My Year of Learning How to Kick Cancer to the Door

It has been a year since I heard the words that no one wants to have burned in to their brain- Sorry, but you have metastatic cancer.  Yep, that was me.  A little more than a year ago.  It was a sunny day. I was going for what was suppose to be a “no brainer” ultrasound of a few “probably nothing” nodes in my neck. I walked in an optomist thinking of nothing more than how I would spend the rest of the day after the procedure shopping.   I walked out of Johns Hopkins outpatient center a statistic – someone with cancer. WOW! In fact, according to some recent stats, I was one of 357,000 women living with Thyroid cancer. Oh Goody!

Because people sometimes read what I write or ask me to speak in media, I get to talk about my Life with Cancer – a lot. As an educator, I don’t mind. It gives me an opportunity to set the record straight and educate others about being proactive with personal health issues. I learned from the best on how to be an example of someone who lives with cancer BUT is not defined by cancer, from my friend and colleague, Maimah Karmo.   I learned to blog about my  pre-op, post-op and treatment phases. I helped others learn too by talking to groups, being interviewed and blogging for others on websites such as, DEAR THYROID.    I even filmed a PSA for IamtheFACEofTHYROIDDISEASE.org.

I learned that you can’t be a member of this “club” alone. That people will come and rally around you. Friends and family will support you in ways that are just too numerous to count. I was really lucky to have a bunch of Cancer Warriors join my team. They all should know who they are and consider this a group hug and THANK YOU!   And, a huge thanks to  all the Top Docs at Johns Hopkins Hospital.  Overall, I was damn lucky this year to have so many in my corner.

     

I realized pretty quickly that if I had to go through this crap that I should do it with grace, humor and a purpose. So, I decided to run a TWITTER SCARF campaign. I stole the idea from my friend, Shara Lawrence-Weiss.  (Pictured wearing her TWITTER avatar hat.Read the TWITTER story here). In essence, I changed my TWITTER avatar to be a free advertisement for a company or foundation. I simply would wear a different scarf and photo shop their logo.  The company would then in turn donate monies to the charity of their choice. I had a lot of response and together we all donate almost a thousand dollars. Purpose.. yep- cancer can give you purpose when you are not caught up in the anger.

Now it was not all fun and games. Cancer never is. The treatment for thyroid cancer is not as bad as other cancers. I didn’t have to have chemotherapy, but I did need to have Radioactive Iodine treatments – which are no joy.  The worst part of the process, however is the waiting. Did the treatment work? Do I need another? Is anything else growing and if so, where?

I also learned some really important life lessons. Cancer is expensive and insurance companies can’t make those co-pays magically disappear.   I learned that not all people want to stick by you and remain friends because cancer may be “contagious”.  Real friends stick around and those who are just in it for only the “good” but not the “bad or the ugly” will run for the hills.  I heard from others who also are in the cancer world that it is not uncommon for  relationships to unravel. That is a shame, but a reality. As I mentioned, I’m grateful for those who stuck around (including my amazing hubby) and deleted the rest. Cancer can be an emotional brain sucker.  No need to spend any synapses worrying about those who were afraid that they may “catch’ the BIG C.

I will no doubt have more journey in the coming years. Cancer doesn’t like to just go away easily. There is always follow-up scans, blood work and more. Even if you are in remission you still have “more to do”.  But, I intend to kick cancer to the door in 2012. Not the front door, but the back door. Cancer doesn’t have the right to go out nicely.

Lastly, Happy Holidays and please feel free to share your pearls of wisdom if you too have been on a cancer journey this year or in the past. Let’s all learn from each other.

9 thoughts

  1. Thanks for sharing your experience, Louise. It is lovely to see how you turned your medical challenge into an educational experience that others could learn from. Congratulations and best wishes for a wonderful New Year. Connie Goldin

  2. Thank you for sharing your story. I found out I had a tumor on my pancreas in October 2008. What a life changer. A thousand questions run through your head, what did I do to get this? What decisions should I have made differently? Will I see my kids graduate high school? Why me?

    I did some quick internet searches and the general outcome is not great for pancreatic cancer. Usually you don’t live very long when it is found. I had surgery on October 31, 2008. The surgeons felt they cut out all the cancer. I’m now diabetic but alive. I thank God for every day, all the good and bad things that happen, because I’m here to enjoy them.

  3. Louise:

    I had no idea! Your willingness to share has to be an inspiration to others! Continue to have such a positive attitude; it spreads-faster than cancer!

    Glad to see that you are getting through this monster.

    My best to you, Mark, Natasha and Seth.

  4. Thank you for the mention and I’m so glad to know that you are doing well… you have become a wonderful friend to me & I hate thinking about you in pain! I’m proud of you and I hope we have many more years of friendship ahead of us!

  5. I remember being told I had breast cancer….i remember immediately thinking…will I see my children grow up…will I be there for graduations, first girlfriends, getting a drivers license, Bar and Bat Mitzvahs, and would I see my children marry? Thankfully I didn’t need chemo. However, even though I was married, I had to drag myself to 33 radiation treatments ALONE, each time sitting in my car crying when I would see the sign for Cancer and Hematology Center. How did this happen, why did this happen…why me? Why….Because it showed me what was important in life, how much my children, family and friends meant to me and how I wouldn’t ever take anything for granted. This past Oct. I reached the 5 year mark cancer-free…the tamoxifen caused complications which lead to a total hysterectomy, but I’m still standing stronger than ever enjoying each day as if it were my last. My wish for this Holiday season is that someday soon we will find a cure for this dreadful disease!!
    Thanks for sharing Louise.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s